Monday June 1st, 2009
Steady day- Will had an hour of PT, speech, OT,neuropsych, and then an informational research session. I participated in PT this morning so I can get checked off with Will to get a "push pass." We did transfers from the chair to the bed, and then went over safety techniques if/when we have an "Oh shit!" moment (if Will loses his balance and is going to fall or go down during a transfer. I think we both did pretty darn well together. I also spent some time with him during OT becuase his Foley catheter should be out tonight or tomorrow, and then he will start to learn how to do an IC on himself and I also have to get checked off on doing IC's. Darcie went over how to do IC's when Will is out in the community. I will tell you that reality has not totally set in yet with Will- he has admitted this yesterday and today. He is just starting to realize that he will be going home with a wheelchair and having to manage his bladder & bowels in ways that he never had to before. Thursday is the medical conference and that may be a very hard day. The future is very unknown and no one can predict what, and if any function he will get back. Of course we all want to hope he will walk again and regain bladder & bowel function, but only time will tell. This is not something I personally have been dwelling on. For me, I am trying to live in the present and learn about what Will's present needs and rights are. Tomorrow he is getting another roommate- a young guy, 21 years old. So the room will be plenty full with the 3 guys in there. Tomorrow is his neuro-opthamology appointment and then Wednesday our folks arrive. This week will probably fly by.